Jan. 31/2008

Ok here's what we found out today. Larry's M Protein count is down to 512. His M Protein was up to 2353. That puts the myeloma cancer activity down 80%. The doctor is very happy with this. We asked what's the next step, and he said that he would just be watching his M Protein count to see how far they drop. It's looking like the stem cell transplant is starting to do some work. We don't go back down to see the doctor for two weeks, so Feb. 14/2008 at 3:00pm is our next appointment.

Jan. 30/2008

Larry will be going down to Columbus tomorrow to see the doctor. We'll let you all know what he has to say about his treatment. Larry's having a very good day today, and the rash is looking a little better today.

Jan. 28/2008

Larry had a very good day today. He no longer has his cold, and the rash is about the same.
We love the baby countdown that Nathan has added to the blog. We are so excited to be having another grandbaby to spoil. Thank You Nathan & Deborah for letting us be part of this joy in your lives.

Jan. 27/2008

Larry's finally over his cold, and his rash is looking a little better today.

Jan. 25/2008

The trip down to Columbus on Thursday the 24th. Larry now has the graft-verse-host disease from his head to his toes. The doctor stop to see how Larry was doing, and He said that next Thursday he would talk with him about a plan that he would like to try. Larry wasn't to see the doctor yesterday but the doctor seen him setting in the hallway and stopped. The doctor up his medications. The Prednisone now he takes 40mg daily, and put him back on the Prograf. He also give him something for his mouth.We'll let you all know what the doctor tell us next Thursday.
Larry's mouth is doing better today.

Jan. 23/2008

Larry's mouth is getting very sore. Maybe the doctor can give him something to help with it tomorrow. He's not feeling very good today because of his mouth and a headache.
Through his blog Larry has heard from a cousin from his dad side. They are trying to get caught up with everything that's been going in there lives.

Jan. 22/2008

Larry's rash is starting to look a little better today. Mason's keeping him hoping. We love having him here with us it makes the days go by faster.

Jan. 21/2008

Larry's mouth inside is getting sore. His cold is getting a little better, and the rash is now on his hands and legs but not to bad. We go down to Columbus on Thursday.
We have our grandson Mason here with us this week, so he keeps us very busy. We just came in from outside and we were very cold, but he was not cold. We took him out on the pond and walked him around on it. He thought that was so cool that he was walking on the water, and didn't want to get off of it to come in.

Jan 20/2008

Well Larry's rash has moved down on his legs and palms of his hands today. The cold is about the same maybe a little better.

Jan 18/2008

Larry's cold and rash is a little better today. Other then that everything is the same.

Jan. 17/2008

Doctors report hopeful.
The cancers activity is a lot lower , 69% LOWER
This due to the Valcade (chemotherapy) received December 14 thru 21.
I have developed graft-verse-host disease (GVHD) which is manifested by a skin rash on my torso and thickening of tissue in my mouth (white spots). A mild form of GVHD maybe a sign the new immune system (stem cell transplant) is fighting cancer. So far I have the mild form of GVHD. We have to watch this very carefully.
Valcade treatment was stopped due to doctors not being sure what would happen if the Valcade was given while I have GVHD. This has not been tested on humans.
This gives us an opportunity to see if my new immune system can fight the cancer.
The Valcade was so effective in fighting the cancer that we are hoping the immune system or the Valcade will put the cancer in remission.
I was put on steroids to help suppress the effects of the GVHD. I have been given pain medications and they seem to be doing their job.

Jan. 16/2008

Larry's cold is about the same, but his rash is looking a little bit better today. We go down to see the doctor tomorrow to find out what it is. I'll let everyone know what we find out tomorrow.

Jan. 15/2008

Larry's very tired today. His cold is still about the same, and so is the rash. Other then that he's doing OK. We were hoping to get down to see all the kids and grand babies this weekend, but it doesn't look like that's going to happen.

Jan. 14/2008

Larry's rash is still the same, and his cold just keeps on hanging on.

Jan. 12

Larry's cold is getting a little better, and the rash is the same.

Jan. 10/2008

Larry's doing about the same. The rash is looking the same also. We don't know how long it will take to get this rash under control. Maybe the doctor can tell us this next Thursday.

Jan. 9/2008

Larry's cold is a little better today, but he's been very sleepy today. The rash is the same today. I tryed to take some pictures of his rash, but you couldn't see it in the pictures.

Jan. 8/2008

Well we had to make a run down to Columbus today, because Larry got up this morning with a rash all over his torso. The doctor thinks it's the graft-verse-host disease. They had to stop the chemo again, and put him on Prednisone (common brand name Deltasone), and Triamcinolone - Topical (common brand name Aristocort A, Aristocort HP, Kenalog, Triderm). His cold is getting a little better today.

Jan. 7/2008

Larry said that he's doing a little better today, and is out walking right now. It's 63 out there, so maybe this will do him some good. I told him not to over do it.

Jan. 6/2008

Larry's not any better today. His cold is about the same. He was going to try and take a walk, but he just couldn't get up the energy to do it. Maybe he can try later. If he's not better by Wednesday I'll call the doctor, and get him in to see him. We'll just have to take one day at a time.

Jan. 5/2008

Earlier this morning Larry was having some pain in the area of his kidneys. I told him to drink more water and see if this would help. He just got up and said that this pain is not there, so drinking more water must have helped. He forgets to drink a lot of water. They are always telling him to drink more water. Well his up and moving around, so I need to see if he needs anything. I'll write more later as the day goes by.

Jan. 4/2008

Larry went down to Columbus for his Chemo treatment today, but they called the doctor and told him that he still had his cold so the doctor came down to see him. He told Larry that he was going to cancel all his Chemo for a week, so he can get over his cold. He all so is giving Larry something for his depression that he has been have trouble with lately.
Larry and I are going to be new grandparents again. This time it's our youngest son and his wife having there first baby. We are so happy for them. I can't wait to hold this baby. We'll have three geandbabies to spoil. ;)

Jan 2/2008

Larry's about the same today. He was in bed a lot today. His sister called him today, and that helps a lot for him to hear from his brothers and sisters. Keep up with the calls.
On a happier note it was my birthday today. My sister called me and sang happy birthday to me. Nathan and Deb brought me a gift over. Nathan and Deb I just love my gift, and I had fun with it.

Happy New Year Jan. 1/2008

Larry's not getting any better. He's getting so rundown trying to fight this cold off. He's not running a temperature, so I don't know what's going on. He goes down to Columbus for his treatment on Friday, so maybe they can tell us what's going on.